|Drawing with the occupational therapist|
on Monday. They're working on circles.
Wow, he's doing great, I'm really, really happy!
He is doing great. There's just no other way to put it. (And trust me, if there were, I'd find it.)
The quick summary is that his energy and mood during the day are great for what he's going though, and pretty decent even without that. During the day, he's basically like a kid with the flu. He might get up and play for a few minutes, or enjoy a short tickle game. But mostly, he's content and comfortable just snuggling up on your lap.
Thursday - Sunday night he had some problems with nausea and vomiting. There's nothing left in his stomach at this point, but he's bringing up a fair bit of bile.
Sunday and Monday night he had a couple episodes of pain each night which we treated with morphine.
Monday morning while he was asleep he got some platelets. (Thanks donors!) Which is completely normal.
Monday morning he developed a fever of about 101-102, so they put him on a third anti-biotic, vancomycin. By this morning his temperature was back to normal.
Yesterday evening, Sarah and Caleb came by and the four of us snuggled up on the bed and watched a movie.
His blood work and liver function look fine. No signs of organ problems from the chemo.
His eating petered out on Sunday. Sunday night the doctors started him on TPN. So he is getting all of his calories and nutrients IV at this point.
I think the biggest news is that he's not in constant pain and doesn't yet need a continuous morphine flow. The pain he's experiencing overnight seems to be centered in his mouth and throat, so he may have some sub dermal mucositis from the chemo and radiation. His diaper area looks great. His skin under his diaper is darkened, but I wouldn't classify it as even as bad as a standard diaper rash.
|Shellacking front and back with desitin.|
In short, I couldn't be happier with how he's doing today.
Infections are and will continue to be a constant concern. At the moment, Ethan's on three different antibiotics, an antifungal and an antiviral medication.
If all goes well, we should see signs of enfraftment in another 8-10 days. That will bring along its own set of potential complications. But that's a concern for another day.
Today he's doing great and we're very happy.